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Autism Waiver

Reminder to please share with your contacts 
The Department of Developmental Services (DDS)
Open Enrollment for the Autism Waiver will be held:

October 17th- October 31st, 2025


Applications and information on the Autism Waiver are now available on the DDS/Autism division website.  Any enrollment forms submitted previously will be discarded. Families must apply again during this open enrollment period to remain on the waitlist. 
 
Applications MUST be postmarked or emailed to DDS between October 17th- October 31st, 2025
 
Important information on the Waiver:  
 
  • This crucial program allows MassHealth eligible children with autism to access intensive treatments and services in their homes and communities
 
  • The program is limited to children between the ages of 0-10 who are MassHealth eligible and at risk of residential placement now or at some point in the future. 
 
  • Eligible children are chosen for Autism Waiver services on a lottery basis and once chosen, receive intensive in-home therapies, services and supports for 3 years, or until the child reaches the age of 10.  After 3 years the child is eligible for less intensive step-down services until age 10.  The waiver also provides related support services such as community integration activities and respite. 
 
 
                                                                                For more information contact Johanne Pino at jpino@massadvocates.org


Johanne Pino

Project Outreach and Training Coordinator|
Young Adult Leaders Fellowship Supervisor
Massachusetts Advocates for Children
25 Kingston St., 2nd Floor
Boston MA 02111
617-357-8431 x 3234
617-357-8438 (fax)

What are age restrictions on an ABLE Account?

What Age Can You Open an ABLE Account?

What Age Can You Open an ABLE Account?

The Achieving a Better Life Experience (ABLE) account is a powerful tool for individuals with disabilities to save money without affecting their eligibility for government benefits like SSI and Medicaid. But at what age can an individual open an ABLE account?

Age Eligibility for an ABLE Account

Any age can qualify for an ABLE account, as long as the individual’s disability began before a specific age cutoff.

  • Currently, the disability must have started before the age of 26.
  • Starting in 2026, this age limit will increase to 46 due to the SECURE 2.0 Act.

Who Can Open the Account?

The ABLE account can be opened by:

  • The individual with the disability, if they are capable of managing the account.
  • A parent or legal guardian on behalf of a minor or someone who cannot manage their account.
  • An authorized representative, such as a power of attorney.

Why Is the Age Limit Changing?

The increase in the eligibility age from 26 to 46 is part of an effort to expand access to ABLE accounts for individuals whose disabilities may have developed later in life, such as those with traumatic brain injuries, multiple sclerosis, or other late-onset conditions.

How to Open an ABLE Account

To open an ABLE account, follow these steps:

  1. Check eligibility based on the disability onset age.
  2. Choose an ABLE program (some states allow out-of-state enrollees).
  3. Gather necessary documents, such as proof of disability and identification.
  4. Enroll online through an approved ABLE program provider.

Final Thoughts

ABLE accounts provide financial freedom and security for individuals with disabilities. If you or a loved one qualifies, opening an account can be a step toward greater financial independence.

For more guidance on ABLE accounts and special needs planning, visit SpecialNeedsTrustsOnline.com.

Emerging Trends 2025 A Conference on High-Impact College-Based Transition Services and Inclusive Postsecondary Education

Emerging Trends 2025 Conference

Emerging Trends 2025: Inclusive Postsecondary Education

📅 Date: June 4, 2025

📍 Location: UMass Boston, Campus Center

Emerging Trends 2025 PDF

I’m honored to be the Keynote Speaker at the Emerging Trends 2025 Conference, an event focused on inclusive postsecondary education and transition services for individuals with intellectual and developmental disabilities.

This conference will bring together educators, families, administrators, and advocates to discuss evidence-based policies, career readiness, and postsecondary success. It’s a great opportunity to collaborate, share ideas, and build a more inclusive future.

Don’t miss out! This event is FREE. Register now to secure your spot:

Register Here

Looking forward to seeing you there!

Plan for Their Future with Confidence

A content couple sits together lovingly cradling their sleeping baby, reflecting the protective nature of special needs trusts.
Secure Your Loved One's Future | SpecialNeedsTrustsOnline.com

Plan for Their Future with Confidence

Creating a **Special Needs Trust** ensures that your loved one’s future is financially secure while preserving their eligibility for essential benefits.

Start your journey today with **SpecialNeedsTrustsOnline.com**—affordable, easy, and legally sound planning at your fingertips.

Get Started Now

Guide to Special Needs Trusts for Families

A Brief Guide to Special Needs Trusts (SNTs)

What is a Special Needs Trust (SNT)?

A Special Needs Trust, or Supplemental Needs Trust, ensures that a person with disabilities can maintain their quality of life without jeopardizing eligibility for vital government benefits such as Medicaid and Supplemental Security Income (SSI). These trusts supplement government benefits by covering essential expenses not provided for by these programs, like education, personal care, and recreational activities

How Special Needs Trusts Online Can Help

Creating a Special Needs Trust may seem overwhelming, but Special Needs Trusts Online makes the process simple, secure, and accessible. Founded by Tom Sannicandro, an experienced attorney and advocate for individuals with disabilities, Special Needs Trusts Online is dedicated to helping families create affordable, state-compliant, and professionally crafted Special Needs Trusts.

Types of Special Needs Trusts

1. Self-Settled SNTs

Funded with assets belonging to the individual with disabilities, often established due to personal injury settlements or inheritance. These trusts must comply with specific Medicaid and SSI requirements and include a payback provision for any remaining assets to Medicaid upon the beneficiary’s death.

2. Third-Party SNTs

Established and funded by someone other than the beneficiary, such as parents or grandparents. These trusts offer more flexibility and do not require payback to Medicaid upon the beneficiary’s passing.

Why Choose a Special Needs Trust?

  • Preserve Public Benefits: Distributions from an SNT are supplemental and do not interfere with eligibility for government programs.
  • Ensure Future Security: Assets in an SNT are managed by a trustee who is legally obligated to act in the beneficiary’s best interest.
  • Tax and Estate Planning Benefits: An SNT can help avoid probate and reduce potential tax liabilities.

Marriage and SSI Benefits

Marriage can significantly impact Supplemental Security Income (SSI) benefits, as SSI is a means-tested program based on financial need. Here are the key ways marriage can affect SSI:

1. Income Deeming

  • The Social Security Administration (SSA) considers part of your spouse’s income and resources as available to you, a process called income deeming.
  • If your spouse has income or resources that exceed SSI’s limits, your SSI benefits may be reduced or eliminated.

2. Eligibility for Both Spouses

  • If both spouses receive SSI, their benefits are combined into a couple’s rate, which is lower than two individual rates combined. For 2024:
    • The individual federal benefit rate is $943 per month.
    • The couple federal benefit rate is $1,415 per month (less than two times the individual rate).

3. Resource Limits

  • SSI has strict resource limits:
    • For an individual: $2,000.
    • For a couple: $3,000.
  • If your combined resources as a couple exceed $3,000, you may lose eligibility.

4. Spouse’s Income Impact

  • If your spouse has earned or unearned income, it may reduce your monthly SSI benefit. SSA uses a formula to determine how much of your spouse’s income counts.

5. Effect of Marriage on Medicaid

  • SSI recipients are often automatically eligible for Medicaid. If marriage affects your SSI eligibility, it might also impact your Medicaid.

Exceptions

  • If you marry another disabled individual receiving SSI, the rules are less stringent, but the couple’s rate still applies.
  • Special rules apply to same-sex marriages and partnerships, as recognized under federal law.

It’s essential to notify SSA of any changes in marital status, as failing to do so could result in overpayments, penalties, or loss of benefits. If you’re considering marriage and worried about its impact on SSI, consulting a Social Security expert or benefits counselor is highly recommended.

For the most accurate and up-to-date details, refer to the Social Security Administration Website on Marriage.

Housing and the Special Needs Trust

three people signing a document in front of a house

 
 

Can a Special Needs Trust Be Used for Housing?

When planning for the future of a loved one with special needs, ensuring they have a safe and stable living environment is often a top priority. One common question that arises is whether a special needs trust (SNT) can be used to pay for housing. The answer is yes, but with some important considerations.

Understanding Special Needs Trusts

A special needs trust is designed to provide financial support to individuals with disabilities without jeopardizing their eligibility for government benefits like Supplemental Security Income (SSI) and Medicaid. These trusts can cover a wide range of expenses, including medical care, education, and personal needs. However, when it comes to housing, there are specific rules and potential impacts on benefits that trustees and beneficiaries need to be aware of.

Housing and SSI Benefits

The Social Security Administration (SSA) has strict guidelines on how special needs trust funds can be used, especially concerning housing. If a special needs trust pays for housing-related expenses such as rent, mortgage, utilities, or property taxes, these payments are considered “in-kind support and maintenance” (ISM). ISM can reduce the beneficiary’s SSI benefits because it is counted as income12.

For example, if a special needs trust pays for a beneficiary’s rent, the SSA may reduce the beneficiary’s SSI benefits by up to one-third of the federal benefit rate, plus $202. This reduction can be significant, but it may still be worthwhile if the trust is providing essential housing support that the beneficiary cannot afford otherwise.

Owning a Home Through a Special Needs Trust

Another option is for the special needs trust to purchase a home for the beneficiary. If the trust owns the home, the beneficiary can live there rent-free without affecting their SSI benefits1. This arrangement can provide long-term stability and security for the beneficiary. However, the trust must have sufficient assets to cover the purchase and ongoing maintenance costs of the property.

Weighing the Pros and Cons

Using a special needs trust for housing expenses requires careful consideration of the potential impact on SSI benefits. Here are some pros and cons to consider:

Pros:

  • Stable Housing: Ensures the beneficiary has a safe and stable place to live.
  • Long-Term Security: Owning a home through the trust can provide long-term housing security.
  • Flexibility: Trustees have discretion in how to use trust funds to best meet the beneficiary’s needs.

Cons:

  • SSI Reduction: Payments for housing can reduce SSI benefits, which may impact the beneficiary’s overall financial situation.
  • Complex Rules: Navigating SSA regulations can be complex and may require professional guidance.
  • Maintenance Costs: Owning a home involves ongoing expenses that the trust must cover.

Conclusion

While a special needs trust can be used for housing, it’s essential to understand the implications for SSI benefits and to plan accordingly. 

By carefully considering the options and potential impacts, families can make informed decisions that provide both financial support and housing stability for their loved ones.

For more detailed information on special needs trusts and their uses, you can visit Special Needs Trusts Online3.


If you have any questions or need further assistance with special needs trusts, feel free to reach out. Your loved one’s well-being and security are our top priorities.

 Special Needs Trusts Online

 

Exciting News: SpecialNeedsTrustsOnline.com is Now Approved by Google for Nonprofits!

Exciting News: SpecialNeedsTrustsOnline.com is Now Approved by Google for Nonprofits!

We are thrilled to announce that SpecialNeedsTrustsOnline.com has been officially approved by Google for Nonprofits! This significant milestone will enable us to enhance our services and reach even more families and individuals in need of special needs planning resources.

How Will This Benefit Our Community?

Our mission has always been to provide comprehensive and accessible information about special needs trusts and estate planning. With the support of Google for Nonprofits, we can:

• Expand Our Reach: More families will be able to find us through enhanced visibility on Google Search and YouTube.

• Improve Our Services: The advanced tools and resources will help us streamline our operations and deliver even better content and support.

• Engage More Effectively: We can create more engaging and informative content, including videos and interactive maps, to help you navigate the complexities of special needs planning.

Thank You for Your Support!

We couldn’t have achieved this without the support of our incredible community. Your trust and engagement inspire us to continue improving and expanding our services. Stay tuned for more updates and exciting new features coming your way!

If you have any questions or suggestions, feel free to reach out to us. Together, we can make special needs planning more accessible and effective for everyone.

 

Choosing the Right Trustee for a Special Needs Trust

🌟 Choosing the Right Trustee for a Special Needs Trust 🌟

Selecting the right trustee for a special needs trust is crucial since the beneficiary does not control the trust assets. Here are some types of individuals to consider:

    1. Close Relationship with the Beneficiary: A trustee who has a close relationship with the beneficiary can provide comfort and familiarity. It’s also beneficial if the trustee lives nearby, ensuring they can be actively involved. 
    2. Experience with Special Needs Trusts: Someone with a background in administering special needs trusts understands the unique requirements and regulations. They know how and when to use the assets to best support the beneficiary’s needs.
    3. Strong Advocate: A trustee who is a strong advocate for individuals with disabilities will prioritize the beneficiary’s best interests and ensure they receive the necessary support and resources.
    4. Financial Management Skills: While extensive financial expertise isn’t mandatory, a trustee should have some financial management skills or the wisdom to seek help from a financial advisor when needed.
    5. Professional Trustee: Professional trustees bring extensive experience in handling trust administrations. They can manage critical tasks such as filing tax returns, issuing notices, and maintaining trust assets efficiently.
    6. Successor Trustee: It’s also important to consider who will succeed the current trustee to ensure continuity in managing the trust.

    Interested in learning more about creating special needs trusts? Contact us today using https://www.specialneedstrustsonline.com/booking-page 

    Learn more at: SpecialNeedsTrustsOnline.com

    You are collecting government benefits and just came into money from a car accident. What can you do?

    Copilot 

    Any money, a person with a disability receiving government benefits, receives, can be protected with a first-person trust!

    Maximizing the Benefits of a First-Person Trust: A Comprehensive Guide 

    A first-person trust, also known as a self-settled trust, is a powerful tool for managing your assets and ensuring your financial security. This type of trust is particularly beneficial for individuals with disabilities who need to maintain eligibility for public benefits like Medicaid and Supplemental Security Income (SSI). Here’s a detailed guide on how you can effectively use a first-person trust. 

    A first-person trust is funded with the assets of the individual who will benefit from the trust. This is different from a third-party trust, which is funded by someone other than the beneficiary. The primary purpose of a first-person trust is to hold assets in a way that does not disqualify the beneficiary from receiving public benefits. 

    To set up a first-person trust, you need to follow these steps: 

    • Use SpecialNeedsTrustsOnline.com as a resource: Find out information about first person, trust, and even draft one now using our nonprofit website.
    • Choose a Trustee: Select a reliable trustee to manage the trust assets. This could be a family member, a professional trustee, or a trust company. 
    • Fund the Trust: Transfer your assets into the trust. This can include cash, real estate, investments, and other valuable property. 

    Funding the trust is a critical step. Here’s how you can do it: 

    • Real Estate: Transfer ownership of your property to the trust through a deed. 
    • Bank Accounts: Open new accounts in the trust’s name or designate the trust as the beneficiary of existing accounts. 
    • Investment Accounts: Transfer stocks, bonds, and other investments into the trust. 

    One of the main advantages of a first-person trust is that it allows you to retain eligibility for public benefits. Here’s how it works: 

    • Income and Resource Limits: Public benefits programs like Medicaid and SSI have strict income and resource limits. By placing your assets in a first-person trust, those assets are not counted towards these limits. 
    • Supplemental Needs: The trust can be used to pay for supplemental needs that are not covered by public benefits, such as education, transportation, and medical expenses not covered by Medicaid. 

    Effective management of the trust is crucial to ensure it serves its purpose. Here are some tips: 

    • Regular Reviews: Periodically review the trust with your attorney and trustee to ensure it remains compliant with current laws and continues to meet your needs. 
    • Record Keeping: Maintain detailed records of all transactions and distributions from the trust. This is important for both legal compliance and transparency. 
    • Professional Guidance: Work with financial advisors and other professionals to manage the trust assets effectively. 

    The trustee can make distributions from the trust to pay for the beneficiary’s supplemental needs. Here are some examples: 

    • Medical Expenses: Costs not covered by Medicaid, such as dental care, vision care, and therapies. 
    • Education: Tuition, books, and other educational expenses. 
    • Recreation: Hobbies, vacations, and other recreational activities. 
    • Transportation: Vehicle purchase and maintenance, public transportation costs. 

    A key feature of a first-person trust is the payback provision. Upon the beneficiary’s death, any remaining assets in the trust must be used to reimburse the state for Medicaid benefits received by the beneficiary. This ensures that the trust does not unfairly benefit the beneficiary’s heirs at the expense of public funds. 

    Here are some scenarios where a first-person trust can be particularly useful: 

    • Inheritances: If you receive an inheritance, placing it in a first-person trust can prevent you from losing your public benefits. 
    • Lawsuit Settlements: If you receive a settlement from a personal injury or medical malpractice lawsuit, a first-person trust can protect those funds while maintaining your eligibility for benefits. 
    • Divorce Settlements: If you receive a lump-sum payment or alimony as part of a divorce settlement, these funds can be placed in a first-person trust. 

    A first-person trust is a versatile and effective tool for managing your assets and ensuring your financial security while maintaining eligibility for public benefits. By understanding the basics, funding the trust properly, and managing it effectively, you can maximize the benefits of this powerful estate planning tool. Always consult with professionals to ensure your trust is set up and managed correctly. 

    Feel free to reach out if you have any questions or need further assistance with your estate planning needs!  https://www.specialneedstrustsonline.com

    1. How Can I Use a First-Party Special Needs Trust? 
    1. New Special Needs Trust Rules 2024: What to Know and How to Prepare 
    1. First Party Special Needs Trust 
    1. How To Set Up A Trust 2024 
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